Saturday, March 12, 2011

Harper's lungs

odd title, yes. who is Harper, and what do their lungs have to do with anything? let me tell you a story. meet one of the sweetest families I have ever had the privilege of taking care of:








these are the Grigsbys: Dustin, Amy, and their precious two year old twins, Eli and Landon. the boys were born a couple of months early back in 2008, and I got to take care of them almost every night that I worked while they were in the hospital.

fast forward: Amy found out several months ago that she was expecting a little girl...so exciting! but then they discovered some very scary, not at all exciting news...Miss Harper, who has not even emerged into the outside world yet, is already in the fight of her life.

Harper was diagnosed with HRHS...Hypoplastic Right Heart Syndrome. In short, the right ventricle (which pumps blood to the heart to be oxygenated) and some of the valves and vessels between it and the lungs are too small...hypoplastic. In the intervening months, there have been dozens of doctor visits...Amy's regular OB appointments, visits with the high risk pregnancy doctors, and visits with a pediatric cardiologist. Multiple blood flow studies have been done on baby Harper's tiny heart. Dozens of images have been taken of the structure of her heart. It's been a roller coaster for all of them.

Yesterday, Amy was admitted to the hospital in Lubbock where I used to work. Earlier this week, her appointment shower that Miss Harper is continuing to not grow like she should be, and her lungs are not as developed as they should be, which is a problem for a little one with a heart defect. Her doctor allowed her to go home after that appointment, but she was expected at the hospital yesterday so that an amniocentesis could be done and a new plan could be formulated. The amnio showed that Harper's lungs are, indeed, not near where they should be. They will be talking with the high risk pregnancy doc today (Sunday) to see where to go from here. for more details, check out Amy's blog here.

So...please pray.

Pray for Amy...that God would give her peace and courage, and that she will continue to hope in Christ and be confident of His hand on this sweet little life inside her.

Pray for Dustin...that God would comfort him as well, and give him the strength to lead his family and trust in you for provision.

Pray for Eli and Landon...that they will be comforted in the days ahead when their mommy and daddy will be away from them, be it working or spending time with Miss Harper while she is in the hospital.

Pray for all of the doctors and nurses involved in Amy's (and later, Harper's) care...for wisdom and guidance, and to follow God's prompting to investigate further hen they can't put a finger on it, but know that something seems not right.

And please, please pray for Miss Harper...pray that she continues to grow. Pray for continued optimal blood flow through her heart. And pray for growth and maturity...in Harper's lungs.




Thursday, March 10, 2011

Ryder

so...just wanted to say that I am working with absolutely the most fantastical, amazing, greatest team leader ever tonight! love to Lauren!




Tuesday, March 8, 2011

sweet mercies

so, the only way to get going with this is to just get started. it's been a long time, friends...hopefully it won't be as long with this happenin' blogpress app :)

I always loved that praise song "sweet mercies"...here are the lyrics, to save you a google search:


It's our confession Lord
that we are weak
So very weak
but You are strong
And though we've nothing Lord
to lay at your feet
We come to Your feet and say Help us along

A broken heart and a contrite spirit
You have yet to deny
Your heart of mercy beats with love's strong current
Let the river flow
by your Spirit now
Lord we cry

Let Your mercies fall from heaven
Sweet mercies flow from heaven
New mercies for today
Shower them down Lord as we pray
Let Your mercies fall from heaven
Sweet mercies flow from heaven
New mercies for today
Shower them down Lord as we pray

I love the verse in Lamentations that promises new mercies every day...indeed, great is His faithfulness.

today, my mercies were breakfast with my fabulous roommate, then some yummy passion tea lemonade from Starbucks, along with some journaling and Jesus. then there was the dentist...and the mercy there was numbing medicine! now, I'm off to cuddle with my dog for a nap.

what are your mercies today? I pray you find something beautiful that encourages your heart.


Tuesday, December 22, 2009

last week...

so i actually wrote this last week, but here it is...

confession: my church attendance has been pretty sketch this semester. sure, i've been gone some and worked some, but mostly, i've been a lazy bum. This past Sunday, though (12/13), i made it to the service and settled in with a few friends.

our pastor just started a new series called "The Wonder of it All." Sunday's title was "Don't Miss the Magic." Jeff talked about the Wise Men and i learned some things I didn't know before. In Matthew 2:2, the wise men are asking King Herod where the new King of the Jews is so that they can worship him. They say that they saw His star in the sky and they have been following it. The history is that the Magi had known that this star, this King, were coming for 600 years, since it had been foretold in Daniel 9. They had been watching all this time, and when they saw it, they jumped up and went to worship a foreign King who wasn't even theirs. They made a great sacrifice to cross a desert of robbers. It could have taken them anywhere from a couple of months to a couple of YEARS, people. Most importantly, they EXPECTED to worship...worship is an ACTION, not a feeling. It is a decision.

Also, they were prepared to worship...they had been watching for this to happen for 600 years, remember? They were WATCHING and WAITING and READY. After they left Herod, they continued to follow the star until it stopped where Jesus was located. Matt. 2:10 says they were totally stoked to see Jesus, that they fell down, and they offered expensive and precious gifts. SO...Jeff's point was that we should always be expecting to worship Christ in any situation...not just church. If Jesus says that whenever we have served the least of these, we have served Him, it clearly follows that acts of service to the hurting hearts and lives around us are acts of worship. Now, fast forward...

so we've been pretty busy at work here lately. close to max census, and we have a lot of high acuity (really sick) kids. 'tis the season...it's like this every year.

since it's been so busy, i worked five days last week and i'm working four this week...i am scheduled for this thurs/fri/saturday, but i had a lot of days off and no plans monday night, so i called about two o'clock monday morning to see if they needed help for monday night. my boss called me back about 7 am and said they could definitely use me, so they'd see me at 7 that evening. perfect. i jaunted off to bed and tucked myself into my warm covers to get some much-needed sleep.

i was running late for work (last minute Christmas decorations for outside), so i was one of the last ones to get there. i pulled my bag of pens and such out of my locker, clocked in, and turned around to look at the assignment sheet that held my fate for the evening. i quickly scanned the list, knowing that someone, somewhere in the unit, was waiting (probably anxiously) for my arrival. finally, i found my name.

my face fell a little. I had been assigned to two very busy, very chronic patients who have both been in our unit for a while. Both of them can get very agitated and be difficult to calm and have very involved nursing care needs. My report took a good 15 or 20 minutes. One of the boys had been good all day, requiring nothing other than his scheduled meds. The other had a pretty rough day, and his mom had been around for most of it. Like so many mothers, she has taken her son's illness very hard, and the months and months of uncertainty are wearing on her. My heart went out to her as I listened to the day shift nurse weave her tale. I knew I was equal to the task of competently caring for my patients, but I was also anticipating lots of running, lots of medications, and probably some frustration second to the inconsolability of my two little charges.

the day shift nurse finally made her escape, wishing me a good night. i organized my charts just the way i like them, cleaned up my desk area, and signed in to the hospital's computer charting system. i noted all of the medications i would need to give, treatments to be administered, feedings, and anything else pertinent to my patients' care on my notes. i peeked into each of the kids' rooms to check on them and jotted down some quick vital signs as i verified that the settings on all of their monitors and machines were correct. both babies were sleeping, so i sat back down to set up my game plan for the night, all the while thinking (a bit self-righteously), "this is going to be a rough night, just get ready...but hey, it's only 12 hours, you can do anything for 12 hours!"

and then i stopped. i remembered that sermon on Sunday. in serving these little kids...in taking care of them, the least of these...the sick ones...in serving them, i would be serving Christ. worshiping Him. and since when has service ever been easy, i ask you? it wouldn't be worship if sacrifice weren't involved. so, sitting there at my little desk, paperwork scattered about...i dropped my head, covered my face, and began to pray like i have never prayed at work.

"Abba, be here tonight. Give me unending patience with these little ones, no matter how upset or inconsolable they are. Fill my mind with your spirit and your compassion for these precious creations of yours. Make my hands and my words gentle, and keep me ever conscious of my actions around them. This little one here, Lord...be with this one's mama. She's so lonely, and she's having such a hard time. Give her courage, Lord, and wrap your arms around her spirit and cover her with your love and peace. Bring comfort to her baby tonight so that he can rest peacefully and not struggle so much. That one over there, Lord...place your hands of peace on him and let him rest. Keep his little spirit calm, and let him respond to me and feel safe with me. His mom is so good with him, Lord...keep her spirits up, because I know this long stay is so hard on her. Bless her for her patience and faithfulness in coming and caring for him. He responds so well to her; is calmer with her than with any of the nurses. Lay your hands over this place, tonight. Make your presence near. I love you. Amen."

And I lifted my head and opened my eyes. What followed was one of the greatest examples I have seen of calling on Jesus and Him answering immediately and in a specific manner.

The rest of the night, one of my little ones was so agitated, no matter what I did or what meds I gave him. He was just having a rough time. Through it all, I stayed calm, talking to him and patting him to help him calm. My other little patient slept well for much of the night, and if he got upset, he was easily calmed and his oxygen status was doing really well. But through everything, I was conscious of being the hands and feet of Christ. I was aware of all of my actions. i can't even explain it...but it was amazing. I felt the attitude of Christ dwelling in me. What wonder and amazement, that he would use someone like me to be a vessel of His love. amazing grace, how sweet the sound...it's true.

so good.

Thursday, November 12, 2009

the FINAL final act

Gather round, children, for I have a story to tell you!

So, as of my last post (and my sorries that it was in September...how patiently you wait!), I had spoken with Donna at CSI and she sent my claim confirmation email. So I got it opened up, printed and signed the release, and faxed it back to CSI. According to them, I should receive my claim check (from Express, no less) within 45 days.

Including weekends, yesterday (the day that the check arrived in my mailbox) was day #50. Are we shocked? No. Do I care? Nope. It's in my hands! A few interesting points: I first called Express on Friday the 6th to check on the status of my check, and they never answered/called me back. I called them again on Monday and they were like, oh yeah, we mailed it a day or so you called! Ok, whatev. You're in Houston, I'm in SA...should take two days, max. I call them again yesterday, and they're like, well, we sent it...it should be coming...k, whatever. So I finally get it today, and guess what?? The check is dated 11/7/09...a day AFTER my first call! I bet they were just going to sit on it til I called! Haters.

Also, note on my facebook album that the handwriting on the envelope looks like a serial killer's handwriting, AND they can't spell my street name. Interesting. BUT I HAVE THE CHECK! I think I'll photocopy it before I cash it, and then I can frame it or put it in a scrapbook or something.

more later about my life; just thought i'd share the last bit of the saga!

Thursday, September 24, 2009

summer drama: the final act (and how apropos, since we're a few days into fall...)

well, express relocation is F.I.N.A.L.L.Y. in my past. yes, people. finally. i mailed in my claim letter (sorry...packet, since it was about 30 pages worth of information and complaint and a packet of 4x6 glossies detailing just how bad they screwed up my stuff) on June 20. Monday was September 21 (that's 3 months and 1 day later...), and so i decided to make a call to the claims company-CSI.

So I dial them up and a nice lady named Donna answers the phone. Hi Donna, how are you? Good. My name is Amy Legg, and I filed a claim with you several months ago. Yes ma'am...months, not weeks. You'll check into it? Stellar. Here's my claim number. ......... Really?? You sent me a confirmation on July 23rd? How VERY odd. If my dear blog readers will recall, that is National Purple Beast Day! Funny coincidence.

So, Donna...I never got that email, and trust me, I'd remember. This has been the drama of my summer and I'd like nothing better than to be done with it. What? Do I check my email? Um...yeah. Several times a day. *What the heck kind of question is that?* Oh, I see. Emails from your company get kicked straight to spam all the time? Stellar. Can you resend that email? You can? Excellent. I will add you to my email list straightaway.

*several hours later*

Wake up from nap and excitedly (but guardedly) check phone. ooh look! new mail! Open it up...three attachments. Open the first one...delineation of claim. final verdict: $152. They approved my claim for $152. It's not the $400 or $500 I claimed, but i don't care. i truly don't. i am so over expending emotional energy on something i can't change. i refuse to engage in a pissing contest of who can scream louder and bitch longer. i am O.V.E.R. them. yay me for getting some money out of the whole mess...i expected them to reject the whole claim.

small victory/jab for me...i did end up claiming the vacuum because when i sent the information in, I still hadn't received it and wouldn't, in fact, for about another month. weights were required for all pieces that i was claiming...i called it 10 pounds. i received a $9 compensation for vacuum not received. and then a month later...i got the vac anyway! ha! screw you express! you had to pay to ship my vacuum (although, recalling the way it was "packaged"...it probably only cost about $9 to ship!), and you then had to pay some compensation for my vacuum because you took so freaking long to get it to me!

i win, assholes. screw you a thousand times. and...be it petty or not...i hope you screw the wrong person and get totally taken out. blah!

love to all (except express, for whom i noted my feelings above)!

:)

Friday, September 11, 2009

reflections on 09.11.2001

to every soldier...every police officer...every firefighter...every volunteer...every person involved from every area of this country...thank you for your sacrifices, your dedication...your committment to this country. to every victim and their families...our prayers continue for you. may God continue to heal and comfort your hearts.

we will never forget.



and go figure...Obama didn't even bother to show up at Ground Zero today. Walter Kronkite, yes...anniversary of a turning point in American history...no. Wake up, America...have you figured out who you REALLY elected into office yet?